I've spent a couple weeks thinking I really need to update my blog because of this event or that event. Now there are so many I don't know how to organize it all, but I'll try my best!
Anyway, the first day or so she was gone, it was so odd not to be counting carbs and logging numbers. Fortunately, I planned a getaway to California with my son and that kept me preoccupied and not spending the nights wondering what her numbers were.
Our First Road Trip/Travel with Diabetes
Just 3 days home from camp, Alex and I were set to drive 1000 miles to a family wedding in Idaho. Originally, my husband was supposed to join us which was the main reason I agreed to go. Sometimes, things don't just work out the way intended. Joe ended up getting a good job offer and the start date was the same week we were set to go to Idaho. After much discussion, I decided to take Alex to Idaho anyway with my brother in law assisting with the driving and such. I really wanted to support our extended family and be present for this wedding. I also wanted to see family we hadn't seen for quite some time. I felt confident I could handle diabetes. Truthfully when all is said and done, I managed. But just as truthfully, it was extremely stressful and frustrating for me at the same time.
We were gone for 6 days. Every single meal was a dining out adventure. I tried to pack some items to eat in the hotel but it just never happened. We only ate at a few established chain places with accurate carb counts. Most places I had to make some wild guesses. I spent at least 15 minutes or so trying to figure out carbs on my phone and getting her shot ready each time. Family tried to talk to me and I felt rude because I couldn't multitask. Everyone was super nice, but it's hard to explain what you're doing and why you're doing it especially since most people don't understand how type 1 differs from type 2. It's also hard to explain when at the same time I felt like I didn't want to spend lots of time talking about diabetes and coming across as being all about my diabetic kid and not about why we were there...for a wedding! So I just didn't know how to talk or handle anything and I ended up stressed and not sure what to say or not say. Alex ran high most of the time with one wild day of lows and highs (80 to 430 in a few hours). It then caused me more stress because I felt I wasn't getting her doses right and couldn't get them right with the odd foods and schedules. To top it off, this trip proved something else I've noticed...Alex likes diabetes attention. She gets over the top about talking about lows and highs and wanting to be obvious about getting shots and such. I don't want her to hide it. But, I don't want her to seek pity and attention because of it. I don't know what to do. And I question if I am talking too much about it if she is picking up those cues from me.
Just 1 day home from Idaho and we were off to Children's Hospital to start up Alex's new Animas Ping insulin pump. I was scared to death and again alone...Joe couldn't take off from the new job. We arrived and the educator quickly got into inserting the infusion sets. There was one other family there. The educator told us a family member must insert the set into themselves before inserting it into our child. Since I was the only one there for us, guess who had to do it!!!! Honestly, I dreaded it and feared the needle. But I KNEW I had to do it. I knew I couldn't act scared or express pain if it indeed hurt. I just had to remember how much crap Alex deals with and suck it up! So I did...and it was probably the best thing I could have done. It gave me confidence. It also taught me it wasn't THAT bad. It felt like a bad flick or something from my brother in law when he is goofing off.
Then I inserted one in Alex's arm. It went well. It totally set my confidence soaring. Before I did it, I kept thinking back to the day I did Alex's first shot from me and how badly it went. I had that in my head. Being successful on the first try of the infusion set was awesome. We set up the pump and were told to change the site the next day to a belly site. The next day, I taught my husband how to do it. We again had no problems with the belly site. Alex was brave and much less bothered by the site insertion than the insulin syringes too.
There has been some frustration with the experience of getting the Animas pump and communication but it doesn't overshadow the ability this pump allows us more freedom and better diabetes control. I can already see the positives not 24 hours from the live start yesterday!
Onward and upward...
Friday, June 8, 2012
Well, it's finally upon us!
- Her A1C was still over 11.
- She had mono.
- She was kicking, screaming and running away from us for all blood tests and shots.
- She would demand we wake her up at 2 AM when we came in to test her and she would sit up and cry and yell during it.
- She was making it to school about 1 day a week.
- She was pale and complained often of joint pains and fatigue.
|Diagnosis Day: 12-20-11|
- A1C coming down, down, down...
- She has good skin color and tone again thanks too from all her outdoor activity and swimming.
- She has gained back all the weight (18 pounds) she lost at diagnosis (and then some).
- She does all of her own blood glucose testing except the 2 AM check.
- At the 2 AM check, she never even opens an eye or gives any indication she is remotely awake. I NEVER thought I'd see the day!
- She draws some of her shots and never fights us when it is shot time.
- She is eagerly awaiting her insulin pump start (set for June 26th) and smiled and laughed after having the infusion set inserted during her pre-pump class.
- She completed the school year with straight As (except for spelling - I'm just not counting that one!) and an easy promotion to 4th grade despite missing an excessive amount of school between January - March.
- Her foot pain is completely gone (hopefully to stay) and she actually gave karate a try this week without pain after the class!
|Tug of War Games with Friends - May 2012|
Posted by TK at 10:30 AM