Tuesday, March 27, 2012

It's all a numbers game...and I hate numbers!

Where did all our good numbers go? I am so frustrated right now because I am so sick of having to change Alex's ratios and ISF and not understanding why none of it seems to matter.

Alex has two days last week where she dropped down to 50 about an hour after eating lunch at school. We happened to her 3 month check up last week the day after that second low. After reviewing her logs, the endocrinologist explained that she felt we needed to tweak her ISF calculation. I'm not going to try to explain it because even though it made sense to me, I still can't easily explain this whole math game to people on my own. Anyway, we changed it and increased her Lantus by a half unit as well.

Fast forward a week. I hadn't seen one number at or below her target of 150 since that appointment. Most evenings she was hovering around 350 and during the day right around 220. Have I mentioned that my moody child is about three times as moody when she is anywhere over 250? Coincide that with spring break and just kill me now, okay?

She also ended up with moderate ketones and she just seemed "dry" toward the end of the week. Most times when giving an injection, the site would leak. I think it was because she was slightly dehydrated but she was majorly uncooperative too and that included drinking more water. I called the doctor's office on Thursday pleading for advice to get those numbers back to the pretty low 100s we'd seen for a few weeks outside a few lows and a few bedtime highs around 200 (I'd take that 200 back right now).

The nurse changed her carb ratio and increased the lantus as of last Friday and told me to give it a few days to see what that did and then call back if it's not coming down enough and they will change the ISF back down again. Well, it's been a few days and while I've seen a few numbers under 200 again, most are staying up still with the exception of that after lunch period where she did have a 158 yesterday.

So, I'm sure I'll be making some changes again to this whole numbers game...again! Have I told anyone lately how much I hate math and numbers? I guess those math teachers were right in grade school when they told me I'd use fractions and ratios some day. I didn't believe them back then...oops!

Thursday, March 15, 2012

When life gives you lemons...

My daughter and I are known by some as some crafty type people. Having that crafty gene has made me save her test strip containers pretty much since she was diagnosed. A type 1 diabetic kid goes through ALOT of containers. Now that I have a big jug of them, I'm starting to think of things to do with them. I am obviously not alone in this thought process because a quick google search provided me a wealth of starting points for ideas. I searched for both test strip canister crafts and film canister crafts.

Please note that if I posted your craft here, it's because I totally admire you're craftiness. I made sure to link back to you and give you full credit. If you wish for me to remove your link or I screwed up your link, let me know. I'm new to this blogging thing!

Also, I read in several places that you should not put food in these containers due to the chemicals involved for test strip preservation. There were a few sites that gave some clever ideas for using these containers with food but I think I'll steer clear of that one just to be cautious. We've had enough bad luck this past year! Regardless of the use, you should wash these thoroughly with soap and water before re-using.

Tooth Fairy Containers
I'm obviously not that clever when it comes to coming up with blog ideas. I found many great ideas for containers from other Diabetes families out there! This one would be a great craft for Alex to make and sell when she does her little lemonade stands and craft stands a few times a year.

From the D-Tales Blog
Canister Key Chains
This one was clever! I could see this being a handy key chain to store little items like band aids, coins, mini pencil/paper, etc.

From Lomography Web Site

Who doesn't like rockets? I could totally see my kids going for this one. I'm not sure if you'd have to modify the canister to be able to remove the lid completely.

From Creative Kids at Home
Pin Cushion
Cute idea for sewers and crafters! Store extra pins inside the container.

From Curating Cuteness

Bobbin Organizer
Another neat one for sewers!
From Bored and Crafty

First Aid Kits
This one seems to be really popular and there are various ideas to make a simple first aid kit. Make it into a necklace. Make the one below to hook to a backpack to store basic first aid items. You can never have enough band aids, right?

From the Making Friends Web Site

From Family Crafts at About.com
Finger Puppets
This one could be fun for little kids especially!

From Family Crafts at About.com
Desk Organizer
This one is something I'd have never come up with on my own!

From Crayola
Water Bottle Boat
This one would win some recycling awards!

From Instructables.com
Mini Music Makers
This is another fun one for little kids or a neat camp project.

From MakingFriends.com

Christmas Lights
Not sure how doable this one is because the instructions call for clear canisters. Since ours are white, I don't think it would work but it is quite a clever idea nonetheless and perhaps something could be expanded upon to make it work in some way with non-clear containers? At any rate, it was such a neat thing, I couldn't help but post it.

From Photojojo Web Site

So do you have any other cool ideas for me for all this medical leftover stuff? I'd love to hear your ideas!

Friday, March 9, 2012

A First Time For Everything

There have been a lot of "firsts" in the 10 weeks diabetes has entered our lives...
  • First time staying in a children's hospital
  • First time in the ICU
  • First time getting an IV
  • First time mom or Alex gives a blood test
  • First time mom ever gives a shot
  • First time having a low blood sugar
  • First time getting an x-ray
  • First time getting mono
I feel like I could visualize the beginning of a new scrapbook album, but it doesn't sound like a very fun one...

We had another "first" this week. I pretty much knew what that first was going to be when I saw the caller ID on the phone at 3 PM being the school district. Alex wasn't on the bus. She had a low when they checked her at the end of the day. They gave her a snack and she went down lower after that snack. That's when I got the call. Oddly enough, I think I was the most calm of the bunch. I drove to the school and by the time I got there she was on her way back up and mostly annoyed she didn't get to ride her bus home.

Chalk that up to another "first" I guess...